An update from Hayley


Hayley was diagnosed out of the blue in November 2021. You can read her original story here. 



'I can't believe it has been 3 years since I was first diagnosed. I wish I could have told that petrified, heartbroken girl that there was hope and that I would still be here 3 years later.' 


I am very happy to say that I am still on my first treatment line and it is working well, I do struggle with the side effects but I would take anything to be given the gift of extra time with my loved ones and Alectinib has given me more time to be a mum and wife which I will always be so grateful for.

I would be lying if I didn't say that I don't live in fear of when it will stop working because, sadly, it will, but that is why research and fundraising are so important so that people like me can have access to more treatment lines which keeps us alive longer. 

I remember asking my oncologist if I would make it to my son's 18th birthday, and I am very happy to say he will be 21 in a few months time. I now so desperately want to celebrate his 30th birthday with him and also reach my other son's milestones.

Being a mum is my greatest achievement and is what I fight for. I always struggle when I am due for my scans, which I have every 3 months, but I try and plan nice things to do in between so we have things to look forward to, and I just want us to be able to keep on making such wonderful memories. 


My heart broke on 11/11/2021, but knowing there is research is helping with the pain. 




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